What is myotonic dystrophy?
Myotonic dystrophy is a chronic, slowly progressing, highly variable inherited multisystemic disease. It is characterized by wasting of the muscles (muscular dystrophy), cataracts, heart conduction defects, endocrine changes, and myotonia. Myotonic dystrophy can occur at any age.
How do members experience myotonic dystrophy?
Top 5 symptoms reported by people with myotonic dystrophy*
Common symptoms
How bad it is
What people are taking for it
Common symptom
Pain
How bad it is
What people are taking for it
Common symptom
Stress
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Anxious mood
How bad it is
What people are taking for it
Nothing reported yet
*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Top treatments taken by people for myotonic dystrophy*
Who has myotonic dystrophy on PatientsLikeMe?
| Age | Proportion | # of patients |
|---|---|---|
| <20 | 0 | |
| 20s | 1 | |
| 30s | 5 | |
| 40s | 18 | |
| 50s | 9 | |
| 60s | 9 | |
| 70+ | 5 |
Distribution of sex
| Sex | Proportion | # of patients |
|---|---|---|
| Male | 14 | |
| Female | 32 |