What is Charcot-Marie-Tooth disease?

Charcot-Marie-Tooth disease is an inherited disorder of nerves. It is characterized by loss of muscle tissue and touch sensation, predominantly in the feet and legs but also in the hands and arms in the advanced stages of disease. Subtypes are categorized by the genetic mutation.

How do members experience Charcot-Marie-Tooth disease?

Top 5 symptoms reported by people with Charcot-Marie-Tooth disease*

*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.

Top treatments taken by people for Charcot-Marie-Tooth disease*

Who has Charcot-Marie-Tooth disease on PatientsLikeMe?

Age

Age Proportion # of patients
<20 3
20s 23
30s 37
40s 55
50s 75
60s 86
70+ 61

Distribution of sex

Sex

Sex Proportion # of patients
Male 124
Female 208

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What is Charcot-Marie-Tooth disease?

Charcot-Marie-Tooth disease is an inherited disorder of nerves. It is characterized by loss of muscle tissue and touch sensation, predominantly in the feet and legs but also in the hands and arms in the advanced stages of disease. Subtypes are categorized by the genetic mutation.



Common symptoms reported by people with Charcot-Marie-Tooth disease

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:



Treatments taken by people for Charcot-Marie-Tooth disease

Let’s build this page together! When you share what it’s like to have Charcot-Marie-Tooth disease through your profile, those stories and data appear here too.

Got a question about living with Charcot-Marie-Tooth disease? Members in the forum might have the answers.


Compare treatments taken by people with Charcot-Marie-Tooth disease

Let’s build this page together! When you share what it’s like to have Charcot-Marie-Tooth disease through your profile, those stories and data appear here too.

Got a question about living with Charcot-Marie-Tooth disease? Members in the forum might have the answers.



Who has Charcot-Marie-Tooth disease on PatientsLikeMe?

  • 0 new patients joined this month
  • 281 say Charcot-Marie-Tooth disease is their primary condition

Age
Age Proportion # of patients
<20 3
20s 23
30s 37
40s 55
50s 75
60s 86
70+ 61
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 77
20-29 years 20
30-39 years 10
40-49 years 17
50-59 years 7
60-69 years 3
70+ years 2

Distribution of sex

Sex
Sex Proportion # of patients
Male 124
Female 208

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 146
Not Diagnosed 13

These charts show data from Charcot-Marie-Tooth disease patients who have completed their condition history
Last updated: