What is carcinoid syndrome?

Carcinoid syndrome is a group of symptoms associated with carcinoid tumors of the small intestine, colon, appendix, and bronchial tubes in the lungs. The principal features of carcinoid syndrome are diarrhea and flushing. Wheezing, telangiectasia, and abdominal pain can also occur.

How do members experience carcinoid syndrome?

Top 5 symptoms reported by people with carcinoid syndrome*

*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.

Top treatments taken by people for carcinoid syndrome*

Who has carcinoid syndrome on PatientsLikeMe?

Age

Age Proportion # of patients
<20 0
20s 0
30s 14
40s 27
50s 63
60s 75
70+ 97

Distribution of sex

Sex

Sex Proportion # of patients
Male 80
Female 198

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What is carcinoid syndrome?

Carcinoid syndrome is a group of symptoms associated with carcinoid tumors of the small intestine, colon, appendix, and bronchial tubes in the lungs. The principal features of carcinoid syndrome are diarrhea and flushing. Wheezing, telangiectasia, and abdominal pain can also occur.



Common symptoms reported by people with carcinoid syndrome

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:



Treatments taken by people for carcinoid syndrome

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Compare treatments taken by people with carcinoid syndrome

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Who has carcinoid syndrome on PatientsLikeMe?

  • 0 new patients joined this month
  • 55 say carcinoid syndrome is their primary condition

Age
Age Proportion # of patients
<20 0
20s 0
30s 14
40s 27
50s 63
60s 75
70+ 97
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 0
20-29 years 3
30-39 years 3
40-49 years 3
50-59 years 6
60-69 years 5
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 80
Female 198

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 28
Not Diagnosed 2

These charts show data from carcinoid syndrome patients who have completed their condition history
Last updated: