What is adenomyosis?

Adenomyosis is the uterine thickening that occurs when endometrial tissue, which normally lines the uterus, grows into the outer muscular walls of the uterus. Some women may have no symptoms and others may experience pain in the pelvic area.

How do members experience adenomyosis?

Top 5 symptoms reported by people with adenomyosis*

*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.

Top treatments taken by people for adenomyosis*

Who has adenomyosis on PatientsLikeMe?

Age

Age Proportion # of patients
<20 0
20s 9
30s 44
40s 105
50s 76
60s 12
70+ 8

Distribution of sex

Sex

Sex Proportion # of patients
Male 0
Female 248

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What is adenomyosis?

Adenomyosis is the uterine thickening that occurs when endometrial tissue, which normally lines the uterus, grows into the outer muscular walls of the uterus. Some women may have no symptoms and others may experience pain in the pelvic area.



Common symptoms reported by people with adenomyosis

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:



Treatments taken by people for adenomyosis

Let’s build this page together! When you share what it’s like to have adenomyosis through your profile, those stories and data appear here too.

Got a question about living with adenomyosis? Members in the forum might have the answers.


Compare treatments taken by people with adenomyosis

Let’s build this page together! When you share what it’s like to have adenomyosis through your profile, those stories and data appear here too.

Got a question about living with adenomyosis? Members in the forum might have the answers.



Who has adenomyosis on PatientsLikeMe?

  • 1 new patients joined this month
  • 97 say adenomyosis is their primary condition

Age
Age Proportion # of patients
<20 0
20s 9
30s 44
40s 105
50s 76
60s 12
70+ 8
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 19
20-29 years 27
30-39 years 42
40-49 years 18
50-59 years 0
60-69 years 0
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 0
Female 248

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 127
Not Diagnosed 0

These charts show data from adenomyosis patients who have completed their condition history
Last updated: